This comprehensive guide thoroughly covers all aspects of neuropalliative care, from symptom-specific considerations, to improving communication between clinicians, patients and families. Neuropalliative Care: A Guide to Improving the Lives of Patients and Families Affected by Neurologic Disease addresses clinical considerations for diseases such as dementia, multiple sclerosis, and severe acute brain injury, as well discussing the other challenges facing palliative care patients that are not currently sufficiently met under current models of care. This includes methods of effective communication, supporting the caregiver, how to make difficult treatment decisions in the face of uncertainty, managing grief, guilt and anger, and treating the pain itself. Written by leaders in the field of neuropalliative care, this book is an exceptional, well-rounded resource of neuropalliative care, serving as a reference for all clinicians caring for patients with neurological disease and their families: neurologists and palliative care specialists, physicians, nurses, chaplains, social workers, as well as trainees in these areas.


Table of contents (22 chapters)

Neuropalliative Care: An Introduction

Creutzfeldt, Claire J., MD (et al.)

Pages 1-8

Severe Acute Brain Injury

Isaac, Margaret, MD (et al.)

Pages 11-23

Prolonged Coma and Early Disorders of Consciousness

Wijdicks, Eelco F. M., MD, PhD, FACP, FNCS

Pages 25-35

Chronic Disorders of Consciousness

Kothari, Sunil, MD

Pages 37-58

Parkinson's Disease and Related Disorders

Miyasaki, Janis M., MD, MEd, FRCP, FAAN

Pages 59-72

Dementia

Caprio, Thomas V., MD, MPH, MS (et al.)

Pages 73-87

Multiple Sclerosis

Vanopdenbosch, Ludo J., MD, FAAN (et al.)

Pages 89-99

Neuromuscular Diseases

Robinson, Maisha T., MD, MSHPM (et al.)

Pages 101-115

Malignant Brain Tumors

Sharma, Akanksha, MD (et al.)

Pages 117-133

Child Neurology

Lemmon, Monica E., MD (et al.)

Pages 135-147

Communicating Effectively

McFarlin, Jessica M., MD (et al.)

Pages 151-160

Prognostication

Mac Grory, Brian, MB, BCh, BAO (et al.)

Pages 161-170

Improving Medical Decisions

Risco, Jorge, MD (et al.)

Pages 171-185

Addressing and Managing Requests to Hasten Death

Weisbrod, Neal (et al.)

Pages 187-203

Withholding and Withdrawing Life-Sustaining Treatment

Jox, Ralf J., MD, PhD

Pages 205-218

Hospice and End of Life Care in Neurologic Disease

Daly, Farrah N., MD (et al.)

Pages 221-238

Pain Assessment and Management

Vaughan, Christina L., MD, MHS (et al.)

Pages 239-255

Spiritual Care

Long, S. Judith, MA, MS

Pages 257-268

Clinician Self-Care

Long, S. Judith, MA, MS

Pages 269-277

Caregiver Assessment and Support

Sannes, Timothy S., PhD (et al.)

Pages 279-292

Practical Implementation Strategies for Outpatient Neurology Palliative Care

Galifianakis, Nicholas B. (et al.)

Pages 293-301

The Future of Neuropalliative Care

Creutzfeldt, Claire J., MD (et al.)